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Rare Disease patient journey infographic describing the diagnostic odyssey
The road to a correct rare disease diagnosis is far too long. Please share this infographic with your community and if you, or...
Medical treatments for Rare Diseases account for only 11% of US drug spending
As US policymakers consider options to address rising health care costs while still meeting the needs of patients, a new report...
Orphan medicinal products
Patients suffering from rare diseases deserve the same quality of treatment as other patients within the European Union.Given...