by ogadmin | Jun 1, 2021 | News
The road to a correct rare disease diagnosis is far too long. Please share this infographic with your community and if you, or someone you know, is in need of information or resources to assist you on your diagnosis journey, please visit NORD Undiagnosed Rare...
by ogadmin | Jun 1, 2021 | News
As US policymakers consider options to address rising health care costs while still meeting the needs of patients, a new report from IQVIA has found that rare diseases account for just 11% of medical invoice spending in the United States, and 79% of all orphan...
by ogadmin | Jun 1, 2021 | News
Patients suffering from rare diseases deserve the same quality of treatment as other patients within the European Union.Given the small numbers of patients affected by rare diseases, the pharmaceutical industry has been reluctant in the past to invest in the research...
Recent Comments